Mark and I visited Victoria at 9am this morning and were excited to see that the CICU doctor was about to take out her breathing tube. He said that when Victoria starts totally breathing on her own there may be more drainage through her chest tubes, so those will be left in a little while longer. He hopes to have those out by the end of the day, however.
Best case scenario, Victoria will be in a room sometime tomorrow. That room will have a bed in it for Mark and me and also a shower, from what we have been told. If this is really the case, this will be a huge blessing for Victoria, and also for us. Hopefully, we wouldn’t need to worry about housing from here on out.
We will update you at the end of the day to let you know how Victoria takes to all the changes that will be made throughout the day.
We have been so blessed with such special friends and family. We’ve gotten to see a few people while being here at UAB that I happened to take pictures with while we were here. Hope you enjoy them!
Today at the 5pm visiting session with Victoria, we were able to talk with the surgeon, Dr. Knott-Craig. We had such an amazing conversation with him. He told us that there are no leaks where the patches are attached in her heart. He said that there may usually be little holes in-between the edge of the patches and the wall of the heart, but in Victoria’s case … there are none. He said it was a solid attachment. That is amazing! He was very excited at the results of Victoria’s surgery. He even seemed giddy about it.
He did say that there looks to be very small leakage with the valves he re-built. As she grows, he believes the leakage will decrease. He seems to think that she will not need medication beyond a 3-6 month period for this leakage. How awesome! God is good!
Mark asked Dr. Knott-Craig about the actual size of Victoria’s heart. He put his two thumbs together and said, “about this big.” It’s amazing that he did such intricate work on a heart so small. Dr. Knott-Craig probably could not imagine the multitude of prayers that were lifted for him, although we told him there were hundreds. God truly did something wonderful through him. We stood, again, in amazement as he described what a success this surgery was and how happy he was with the results.
We know that God used this brilliant surgeon as His instrument to bring healing to our little Victoria. May all the glory go to such an awesome God!
This morning at 9am we were able to visit Victoria for about 20 minutes. It was wonderful to see her squirming around in her tightly bound blanket. The nurse said that they wrapped her up earlier to keep her from pulling on any tubes or wires. She even opened her eyes just a little bit while we were there. After a few minutes of her squirming, the nurse gave her something to help her relax.