Am I For Real?

Recently, I was asked an interesting question. The inquiry came from a friend of a friend. The question was, “Are you for real?” I thought that to be an odd question at first. After all, I feel like I’ve bore my heart and soul out in my blogs. This question happened to come from another mother of a Down Syndrome girl older than my own. I guess she may have thought I had dealt with Victoria and her “issues” better than she expected I would. I was a little surprised to know that someone actually thought I had done well emotionally through the past few months when, at times, I felt like I was falling apart.

I openly admit that I have cried more and harder in the past few months than I think I have in my entire life. I openly admit that my brain has been on major overload more than I thought I could handle. I have seen the verge of insanity and I think in my heart that the Lord kept me from falling over the edge.

Nothing is harder than feeling out of control. That is exactly where my life has been. Even last night after going to church for a morning AND night service for the first time with Victoria, I felt majorly stressed out last night. And, after having a very stressful day, I was only to be awakened three or four times during the night by a screaming 1 1/2-year-old who couldn’t find her pacifiers in her bed (Okay … I really don’t know what is worse … a child who sucks fingers or one who is addicted to pacifiers!).

Life is really trying at times right now with three young girls. I just know that I pray a lot and ask God to help me bear through it. I’ve learned that God isn’t just there during the “bright spots” in our life, but He’s there during the most difficult times. As times are challenging in the day-to-day living, I have to think back on all the Lord has done for us in the past few months. I have to say, “Okay, Lord. If you can save my child from death, surely You can keep me sane each day with the pressures I encounter.” I have to trust that God will give me what I need when I need it.

I’m thankful for a Father who holds me in His hand and reminds me that He loves me. He reminds me that He has me exactly where He wants me … caring for my beautiful gifts from Him. What a privilege that He thought I could handle all He has placed on my plate. I just take each day as it comes and praise Him for helping me through it. I know eventually, as my girls grow, that things will get easier in some ways and harder in others. It’s a cycle that continues. But, I’m sure as they grow, I’ll think back to these days and almost wish they were here again!

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At The Beach

Mark’s parents have a beach house at the Gulf and we spent the past few days there with them. We had a really nice time, even though it was a very short stay. I’m sure the girls enjoyed some different scenery since we have been home a lot over the past few months because of Victoria’s condition.

Elyssa especially loves the sand (and dirt)! Here she is laying in it.

We went to the zoo one day and enjoyed seeing all of the animals. The girls really loved it and Mom was great to stay with Victoria at the beach house while we had our fun outing.

Victoria rolled over for the first time on Thursday! I tried to get it on video, but the best I could do is get a photo of her on her side. Trust me, she did roll over and we were all excited!

Natalie is NOT a “heat” and “beach” person so far. She is just happy to stay under the house (or in it), where she will not get too hot. We believe this is due to her sensitive skin and hope she grows out of it.

Natalie wore her hair in pigtails for the first time and was extra-cute!

Mark’s brother, Dendy, and his wife, Janay, had their 2nd little girl while we were at the beach. They live in Foley, so we stopped by to see them at the hospital on the way home. They named their little girl Mary Katherine Messick. She is a cutie and had a head-full of hair!

The past few days were a lot of fun and we feel so blessed to have access to the beach whenever we want to go there. Hopefully, in the near future we can take another trip over there!
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"Messick!!!"

Natalie has been a little slow in saying words that we understand. Don’t get me wrong, she talks ALL the time. She is “jibber-jabbering” though. You can understand how we got excited tonight when she repeated us saying “Messick” pretty clearly. We were in the van coming home from “Comedy Night” at our church (YES…we have comedians come in and do shows each summer for a few nights!!!). Mark asked her to say “Messick” and she did. It was so cute that we all clapped and cheered for her. So, all the way home that is what we had her saying. When we got in the house, we decided to video her. Wouldn’t you know she got all shy!! She and Elyssa are total opposites. In the video, Elyssa is climbing on my head or doing whatever she can to get in the shot. Natalie is crying trying to get away from the camera. Go figure. Enjoy the video!

Ahhh…she finally says “Messick” in this next clip!

The following video is of my nightly ritual with Natalie. “The brushing of the teeth!” It’s always a terrible experience for both of us. Maybe you will get a laugh from it. Maybe one day, she and I will too!

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Return To Normalcy?

A few months ago when I dreamed of what it might be like to “be on the outside” I had no idea that I might feel anxious about finally being there. I remember the weeks after Victoria’s birth knowing how I could not take her out of the house to prepare for her surgery. I would get restless knowing that the life of freedom I once had was being taken away from me to, instead, offer protection to my little one. Then, I think back to our time at UAB with Victoria, knowing that we would not soon be leaving. There was, again, a feeling of being “stuck” in a location that was not our home. We were in no real routine and our “normal” life was not within our grasp. Our “normal” life was about 3 hours away and seemed to be, really, a thing of the past. I felt like I would never have a “normal” life again with a special-needs child. I mean, how could anything possibly seem normal again? Could we really get use to this new situation and begin a new routine that we could easily fall into?

Now that Victoria can be taken out in public, I find some of my feelings to be ironic. While I use to long to be back in my old routine of running the roads, now I feel cautious about doing too much. Nursing hinders me from doing as much as I use to do anyway. In the way of attending church, there are many who would love to hold Victoria. I believe I will feel cautious about letting anyone hold her until I know she is 6 months out from her surgery. See, she still cannot be picked up under her arms because of the healing that still is taking place in her sternum. Just tonight, at a fellowship, someone was beginning to pick her up under her arms and I had to quickly stop them. I know this is unintentional, but I feel so much safer to keep her in my arms rather than her be passed around to others who might cause any trauma to her chest.

At this juncture in my life, I do feel that we are developing some feelings of normalcy, but at the same time, there are still many changes taking place. I will soon be teaching voice lessons, directing a praise team for our family ministry, Elyssa will begin 3K and we will begin seeing therapists to help Victoria along in her development. Maybe these new changes will seem “normal” at some point, but I’m beginning to feel anxious about everything being dumped on my plate all at once. It’s a lot for a mom who’s been out of it all for so long.

Now that Victoria can be taken out in public, I also find some of my feelings ironic.
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